SMA Walk

Today's post is a little different than our usual posts. Wyatt is at Grandma and Grandpa's, so we have no pics to share.
I would, however, like to take the opportunity to share with you some information about one of Wyatt's best friends Dani. Dani is a 3 year old girl from Lexington, KY. Her mom and I (Michelle)are very close friends. At the age of 6 months, Dani was diagnosed with a disease called Spinal Muscular Atrophy (SMA). SMA is a recessive genetic disease that destroys the nerves controlling voluntary movement (very similar to Lou Gehrig's disease, but in children) and has 4 different types. Dani has Type 1, which is the most severe. There currently is no cure, however SMA was selected by the National Institute of Health as the prototype for an accelerated drug discovery effort, singling out SMA as the disease closest to treatment of more than 600 neurological disorders. Dani is a very smart and social girl that loves school and friends. I am on a committee that is organizing a walk to raise awareness and money to find a cure for SMA. The save the date card is pictured on this post. If you live near Lexington, KY, we'd love to see you there. If not, please feel free to check out www.fsma.org for more information on SMA or to make a donation for research. Thank you!